Fundraiser Helps Pennsauken Natives Dealing With Rare Disorder
By Frank Sinatra, AAP Editor
A special event on Sept. 30 will raise funds to help support two Pennsauken natives as they work tirelessly to help their sons, both of whom have an extremely rare disease.
A special event on Sept. 30 will raise funds to help Pennsauken natives Ryan and Kelly Sexton as they work tirelessly to help their sons, Dylan and Logan, both of whom have MED13L, an extremely rare disease.
Both Ryan and Kelly Sexton grew up in town, fell in love, got married, and started to raise a family. Their young sons, Dylan and Logan, have MED13L syndrome, a medical condition so rare that the boys are two of just 15 known cases in the world.
MED13L, an autism spectrum disorder, is characterized by facial dysmorphism, intellectual disability, speech and language impairment, motor developmental delay, and behavioral difficulties. The Sextons spent seven years and countless dollars into researching their children’s condition; it was only until tests were conducted in Germany that Ryan and Kelly could put a true name to the disease.
To help create further awareness about MED13L and to offset medical costs for Dylan and Logan, including equipment and therapy needs, a beef and beer is being held on Saturday, Sept. 30, 6:00 p.m. at Camden Catholic High School, 300 Cuthbert Blvd. Cherry Hill. The cost is $35 per ticket and includes food, drinks, raffles, and more.
To purchase tickets, visit Eventbrite.com and search “Dylan and Logan Sexton MED13L Fundraiser.” For those wishing to donate baskets, e-mail MED13L.DylanandLogan@gmail.com.
