Local Community Helps Pennsauken Natives Dealing With Rare Medical Diagnosis

May 9, 2016   News

Frank_ProfilesmallBy Frank Sinatra, AAP Editor

The local community is rallying around two Pennsauken natives as they work tirelessly to help their sons, both of whom have an extremely rare disease.

SextonFamilyBoth Ryan and Kelly Sexton grew up in town, fell in love, got married, and started to raise a family. Their two sons, Dylan, age 6, and Logan, age 4, have recently been diagnosed with with MED13L syndrome, a medical condition so rare that the boys are two of just 15 known cases in the world.

MED13L, an autism spectrum disorder, is characterized by facial dysmorphism, intellectual disability, speech and language impairment, motor developmental delay, and behavioral difficulties. The Sextons spent seven years and countless dollars into researching their children’s condition; it was only until tests were conducted in Germany that Ryan and Kelly could put a true name to the disease.

To help create further awareness about MED13L and to offset medical costs for Dylan and Logan, including equipment and therapy needs, a beef and beer fundraiser is being held on Saturday, May 14 at Holy Trinity Armenian Apostolic Church from 5:00 to 10:00 p.m. In addition, a GoFundMe page has been created to help provide financial support for the family.

For more information about the upcoming fundraiser, click here.

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